Thank you to everyone who joined the Burrow Seven Racing Club in 2021 to support the MND Association and help them continue to fund vital research into MND. We are hoping that you will join us again as a member in 2022. All funds raised will be split equally between the Leeds Hospitals Charity appeal to build the Rob Burrow Centre for MND (supporting people living with MND and their families), and the MND Association to fund research that brings us closer to a cure for MND.
“I’m really thankful for the donations made by the BurrowSeven Racing Club. As I said last year , research is the key to cure this disease and I know every penny of the £100,000 donated will be very well spent.
For 2022 I am asking the Racing Club to support the MNDA and my new Leeds Hospital Charities appeal to raise funds for a new specialist MND unit. I hope all you members and sponsors can continue to support this unique fundraising campaign”.
Burrow Seven is a unique fundraising campaign for Rugby League legend Rob Burrow, which has already donated £100,000 to the Rob Burrow Fight Back Fund with the MND Association.
In 2022 the Burrow Seven Racing Club will raise money for the MND Association and Leeds Hospital Charities
Why join the Burrow Seven Racing Club?
Help support research projects funded by the MND Association that will bring us closer to new treatments and an eventual cure. Members will receive regular news updates from the charity about developments and progress. Also help support Rob’s appeal to raise £5M to build a specialist MND unit with Leeds Hospital Charity Trust.
Experience what it feels like to own a thoroughbred racehorse…. Drama. Excitement. Glory! You’ll have the chance to win tickets to watch Burrow Seven race from the owner’s enclosure, and to visit him at his training yard
Receive a welcome pack with photos of Rob and the horse, a certificate of membership, a letter of thanks from Rob, a letter from the MND Association and a letter from the Leeds Charity Hospitals Trust.
Be part of Rob Burrow’s inspiring legacy
LIVING WITH MND
Rob was diagnosed with motor neurone disease (MND) in December 2019. There is no cure for the degenerative disease that affects up to 5,000 adults in the UK. In less than a year Rob has lost his voice and his ability to walk, he suffers difficulty breathing and stiff joints cause him severe pain. He is 38 years old.
Rob has shown the same spirit in his battle against MND as he did on the pitch playing for Leeds Rhinos for 16 years. He doesn’t want the disease to define him. He and his family have worked tirelessly since the diagnosis to raise awareness of the condition and to raise vital funds. His battle has gained nationwide attention and he’s earned a whole new set of supporters who have followed his journey and been inspired by his courage and dignity.
BurrowSeven is rising 5 years old. He has a great pedigree and is related to many famous winners. Named BurrowSeven after the shirt Rob played for in for 16 years this racehorse is one to really look forward to in the future. Whilst BurrowSeven has had a couple of niggly setbacks he is now back in full training and we’re so excited to announce he’s made his racecourse debut!
Membership in the Burrow Seven Racing Club costs just £59.
The profits from membership sales will be split equally between the MNDA and the Leeds Hospital Charity Appeal.
Members not only get to be part of an exclusive Racing Club but they also get to be part of Rob Burrow’s inspiring legacy.
A Message From Barrie McDermott – Former Leeds Rhinos legend , Sky Sports Presenter and BurrowSeven Brand Ambassador.
I would like to say a huge thank you to all BurrowSeven members, corporate partners and brand ambassadors for their brilliant support and help during the 2021 Burrow Seven fundraising campaign.
Through your efforts and contributions we have been able to donate £100,000 to the MNDA. This is a unique and very different way to raise funds but I can only say that it exceeded all our expectations and something of which we can all feel very proud – particularly working under the impact of the pandemic.
As we all know Burrow Seven has had a couple of slight setbacks that has prevented him making his racecourse debut but I’ve spoken to the Burrow Seven team and our trainer Jedd O’Keeffe and we are aiming to get Burrow Seven to the recourse in December. Jedd has a specific race in mind so please look out for further details.
We are now launching the 2022 campaign with a number of ambassadors and partners already signed up to help with the launch – and now the rules for attending sporting events has been relaxed we are planning to hold a number of special events in the New Year.
We will be in touch with each partner, ambassador and member with details of our new campaign so, if you can, please give the Burrow Seven fundraising initiative your continued support.
Motor neurone disease (MND) describes a group of diseases that affect the nerves (motor neurones) in the brain and spinal cord that tell your muscles what to do. With MND, messages from the motor neurones gradually stop reaching the muscles.
This leads the muscles to weaken, stiffen and waste. MND can affect how you walk, talk, eat, drink and breathe. Some people also experience changes to their thinking and behaviour. However, MND affects everyone differently. Not all symptoms will affect everyone, or in the same order. Symptoms also progress at varying speeds, which makes the course of the disease difficult to predict.
MND is life-shortening and there is no cure. Although the disease will progress, symptoms can be managed to help achieve the best possible quality of life. There is a 1 in 300 risk of getting MND across a lifetime. It can affect adults of any age, but is more likely to affect people over 50. To find out more about the MND Association visit here.
About the MND Association
The MND Association focuses on MND care, research and campaigning. Their vision is a world free from MND. They invest in research that will take us ever closer to the discovery of new treatments and ultimately a cure.
They fund and promote research projects which help understand the disease process and uncover new treatments, as well as improve healthcare. They are a leader in the funding and promotion of cutting-edge MND research, both within the UK and across the world. Over the past two decades, MND has moved to the forefront of neurological disease research. Thanks to advances in technology, increased collaboration, determination for a cure, and funding from supporters, real progress is being made.
Rob has asked that all funds raised from Burrow Seven be spent on research projects funded by the MND Association.
Some of the types of research projects funded by the MND Association can be seen here.
Identify therapeutic targets
By identifying what causes MND and the underlying processes involved in developing the disease, scientists can develop effective targeted treatments, and potentially approaches to prevent the disease.
By investing in research projects to help drive fundamental discoveries through the various stages of treatment development, from laboratory to clinic, we can accelerate the drug development process.
Understand disease progression
These projects aim to find a marker of disease progression, to speed up diagnosis, prognosis and to aid disease monitoring.
Improve standards of healthcare
These aim to have a direct impact on people with MND here and now, as well as those diagnosed in the future, by increasing quality of life and improving healthcare.
The International Symposium – collaborating to find a cure
We know that collaboration is the key to defeating MND. Every year, the MND Association organise the International Symposium on ALS/MND, which is the largest medical and scientific conference specific to ALS/MND in the world. The Symposium brings together the best and brightest scientists and clinicians, to share their work and discuss the latest advances in research and clinical management. This year it will a Virtual Symposium.